The International PPB Registry
Oncology Director
Yoav Messinger, M.D.
Children's Hospitals and Clinics of Minnesota
2545 Chicago Ave. S, Suite 412
Minneapolis, MN 55404
612-813-7116 Phone
yoav.messinger@childrensmn.org
Research Coordinator
Gretchen Williams, CCRP
Children's Hospitals and Clinics of
Minnesota
2545 Chicago Ave. S, Suite 412
Minneapolis, MN 55404
612-813-7115 Phone
612-813-7108 Fax
gretchen.williams@childrensmn.org
Oncologist
KrisAnn Schultz, MD
Children's Hospitals and Clinics of
Minnesota
2545 Chicago Ave. S, Suite 412
Minneapolis, MN 55404
612-813-7115 Phone
612-813-7108 Fax
KrisAnnSchultz@childrensmn.org
Historical Aspects
The Registry was developed in the early 1990's following Dr. Louis Dehner's initial description of PPB as a unique tumor of childhood. The Registry was initally a collection of patients whose cases were referred cases from across the country. Participating physicians include oncologists, pathologists, pediatricians, scientists, and data analysts from many institutions who have been working together for over 20 years to improve the diagnosis and care of children with PPB. The Registry’s main bases of operation are the Children’s Hospitals and Clinics of Minnesota, Minneapolis, Minnesota, Barnes-Jewish and St. Louis Children's Hospitals, St. Louis, Missouri, and now Children’s National Medical Center, Washington, D.C.
The mission of the Registry is to enroll all patients diagnosed with PPB, to provide expert pathologic review, and to collect clinical and outcome information. In turn, the Registry provides clinicians and families with treatment recommendations based on rigorous study of all available data. To learn more about PPB visit the Registry website at www.ppbregistry.org. There are no charges for any services from the Registry.
The Registry also supports clinical, basic and translational science initiatives designed to find the cause of PPB. The International Pleuropulmonary Blastoma Registry’s research program is supported by Children’s Hospitals and Clinics of Minnesota, Washington University Medical Center, and Children’s National Medical Center. Registry operations have been funded since 1987 by an annual charity tennis tournament, the Pine Tree Apple Tennis Classic, dedicated to research in pediatric oncology and by the Theodora H. Lang Charitable Trust.
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